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is Nemaline Myopathy Awareness Month! Gofund Me Nemaline Myopathy Research Link is in our Bio❤️ We are raising money for our annual contribution to NM research and asking you to share, like, comment, donate and tag @MrBeast There is currently NO cure and NO treatment for Jackson’s muscular disease. Nemaline affects 1 in 50,000 people, but Jackson’s exact mutation has never been recorded. So.. Jackson really IS one of a kind ❤️ Nemaline Myopathy affects every muscle in a person who has NM’s body. If it’s a muscle, it’s affected in some way. Jackson’s almost 3 and not yet walking on his own and he relies on Gtube nutrition to keep him healthy. He’s improved significantly since birth. From barely moving, needing breathing support, 100% gtube fed and having a prognosis of 3 months to live to crawling, eating and drinking 50% of his nutrition, cognitively advanced, assisted walking, etc. please join us in bringing awareness to Nemaline Myopathy❤️ #nemalinemyopathy #arthrogryposis #gtube